LEPRA Society’s had its presence in Madhya Pradesh (MP) for more than two decades. Its initial work started with activities in leprosy and disabilities. LEPRA currently operates in 26 districts of MP in the areas of leprosy (1993), tuberculosis (2008), HIV and AIDS (2008).
We have considered highlighting the concept of referral centres evolved as TRU initiative and St Joseph’s Leprosy Centre (SJLC) in Madhya Pradesh – exclusively providing RCS for the whole of Madhya Pradesh.
MP State Leprosy Forum
LEPRA Society is committed to support to provide quality life to persons affected by leprosy. This resulted LEPRA in providing support to State level forum (established in 2012 by the support of LEPRA Society) of persons affected by leprosy to raise their community voice and build community-based support system in states where LEPRA is working presently.
Sahyog Kusht Nivaran Sangh (SKNS) is committed to support to provide quality life to persons affected by leprosy and 33 leprosy colonies in 50 districts resulting in forming a State level forum. The forum raises their community voice and builds community-based support system.
The forum has supported 19 students from 12 leprosy colonies by providing education scholarships sponsored by SASAKAWA Chetana project. As per the government records, there are 28 colonies in the state, where 3311 persons are residing, out of them 1138 are leprosy affected. The base line data about colony was collected by TRU in collaboration with state Leader, State Leprosy Forum. All colonies got registered under the registration act. A sensitisation meeting of all the presidents and secretaries of colony was organised with an objective to arrive at the problems encountered by the persons /families residing in colonies.
In August 2012, Mr. Sarang, State Leader Leprosy Forum-MP, during the visit of Mr Sasakawa, WHO Goodwill Ambassador and Chairman, The Nippon Foundation, to Bhopal and meet the Honourable Chief Minister, Health Minister and Human Rights Commissioner to raise the profiles of persons affected by leprosy by addressing their issues and enhancement in disability pension.